Monday 29 June 2015

TIRED PITUITARY BRAIN TUMOUR STORM - VIDEOED


PITUITARY BRAIN TUMOUR STORM - VIDEOED




(This Video was recorded yesterday - I had NO IDEA I was doing it - but as I have recorded so many videos now, I must have done it out of 'normality' rather than 'knowing' what I was doing - when I woke - I had no idea and only realised when I logged onto Facebook and seen I had uploaded it - I did this out of habit - and just 'did it ' - even the message I put with it can be seen as to be 'not me' - I know im not particularly Articulate and find it hard to think to type - but at least most of my spelling is decent !! if you watch this video - then the one I have just posted this evening- you can see the difference between the two ! - for those that don't know - I am unable to think / concentrate / speak / look at the camera / and get immense pressure and pain in my head - I am NOT one to cry at things ( Unless its animal related !! ) and so you can - I hope understand the immense pressure this puts on myself and the family - and - not being funny - people that watch me as I go into this 'Storm' from being - seemingly ' normal ' !!!! - lol - well I hope you can anyway !! )



HERE GOES - HOPE YOUR SITTING COMFORTABLY !

Ok, been inboxxed asking to see a kinaf STORM !!!! pmsl, well , there are lotd types, but this is going Into a tyred storm, also anger, over not stuff, hysteria, upsets and suicidal, n no, the two arnt the same, I can think to tyupe but not to spek, so, here goes n those who know me, known thing isn't ME !!




https://www.facebook.com/abigail.barry/videos/vb.705695438/10153473681265439/?type=2&theatre

STORM VIDEO - ABOVE ....... AND NON STORMING VIDEO LINK BELOW !!

https://www.facebook.com/abigail.barry/videos/10153476410235439/?pnref=story

THESE WERE SOME OF THE LOVELY COMMENTS I RECEIVED WHEN I WOKE UP TO FIND I HAD POSTED THE VIDEO ! ( I have removed the links to individuals websites as im sure you don't want to be contacted !! )


Leigh Thompson, Oliver James Schofield, Andrea Turner and 8 others like this.
  •  
    Jacqueline 'Lear' Bryson Abster I just cried with you. It breaks my heart to know this is happening to you all the time, the sorrow, pleading in yr eyes. Yr so brave. I'm so lucky to have yr friendship x x x

  •  
    Louise Sullivan Abby you're very brave but I also feel sad that people are that nosy to want to see you when you're suffering. I understand people's human nature but it feels to me like it's just the pointing and staring of the Internet world instead of in the street. However, if it makes others that suffer the same medical problems as you feel that they aren't alone then I applaud you and your bravery. Lots of love and I hope the pressures easing now xxx

  •  
    Sophie Fowler Oh sweetheart I had really no idea what you go through everyday. You are so brave why oh why can't someone please find a way of removing this horrible thing!!! You're going to get through this Hun it's not going to beat you!!!
    Hope it's settling down now and your feeling better xxx

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    Jacqueline 'Lear' Bryson I tried to get my professor to help her but no one seems to. Our Abi doesn't deserve this .

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    Mark Bingley I feel so sorry for you Abby, I wish I could wave a magic wand and take all your suffering away! Life is so unfair. All my love, speak soon. XXX

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    Dawn Borny Love ya abs xxxxxxx

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    Maggie Dark Brave girl.made me cry love you.always abbiness to me.xxx x

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    Sandie Roughley Omg abi I was in tears watching this. .I just wanted to get in the car n hug u to the pain went. .. no words just. ...no words ...love ya x

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    Louise Lead You are loved and No, that is not you ! Xxx
    Unlike · Reply · 3 · 23 hrs

  • Abigail Barry An anger storm and a crying one since, now I'm fine !!!! I've had a real mixed reaction to this video, n more people think its good to have posted it, only a few say I'm upsetting people and two said it was put on, but I didn't know them!!! Bless em!! If I have upset you I am sorry, really, but to David and Ellen I am So so very pleased it helped you realise you are not alone..... Much love xx
    Like · Reply · 2 · 22 hrs

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    Kathy MsAllen Breaks my heart.. wish you weren't going thru this abi xxx
    Unlike · Reply · 1 · 22 hrs

  •  
    Carolyn Turmaine Sending you love light and healing energy sweetheart.

    =^,^=
    Unlike · Reply · 1 · 14 hrs


  •  


    I HAVE ALSO RECIEVED INBOX MESSAGES AND TXTS - AND I GUESS PEOPLE JUST THINK THIS WAS A ONE OFF - LOL - IT HAPPENS UPTO 4 TIMES A DAY !! - THIS AS WELL AS ANGER 'STORMS' AND 'CRYING' STORMS AND 'SUICIDAL' STORMS - But - I have learnt to live with them - Its the hurt I cause everyone else that kills me .....
     
    as I said in the 2nd video I am going to TRY to get into the mode of thinking that I have to video each of my sotrms - but - one - remembering is a HUGE problem and two - when im SCREAMING - or hysterical or whatever - videoing is the last thing on my mind !!! - BUT - I thought this Video may help - someone - somewhere - realise that THEY ARE NOT ALONE - and symptoms are rife in LOADS of people .... KEEP FIGHTING ...

     

    Thursday 18 June 2015

    PSYCHOLOGICAL BEHAVIOUR WITH ME AND MY PITUITARY TUMOUR / AMGYDULA GLAND PROBLEMS !!

    PSYCHOLOGICAL BEHAVIOUR WITH ME AND MY
    PITUITARY TUMOUR / AMGYDULA GLAND PROBLEMS !!



    HELLOOOOOOOOOOOOOOO !! - Me again - Now - before I forget - I have come here to write a piece of the above as I have just read a fantastic article that a chap had written - ( link inc - https://lookingintothemuir.wordpress.com/2014/04/17/the-psychological-behavior-changes-of-pituitary-tumors/?blogsub=confirming#subscribe-blog ) and it was so inspirational to ME - I thought I may be able to help the cause and help someone else !! - lol - Just by letting them know that the symptoms THEY are experiencing are NOT PSYCHOTIC OR PSYCHOLOGICAL !! - YES - They are two different things !!
    Psychosis is an umbrella term to describe the mental state of losing touch with reality. A number of things can cause psychosis, from schizophrenia to depression to sleep deprivation.
    Psychopathy, is a personality disorder which consists of a lack of empathy, impulsivity, recklessness, scrupulousness, callousness, and lying.
     
     
     
    NOW - ALL of the above can and have been Symptoms of MY Particular DIAGNOSED Pituitary Tumour - BUT = Due to the Pit Tumour Pressing on the Front Lobal Cortex - IT MAKES IT MEDICAL AND NOT A MENTAL PROBLEM - Although - I can and have and DO CONTINUE to show as ALL OF THE ABOVE - It is actually KNOWN to the Crisis Team that none of the USUAL ways to calm a Psychosis or Psychological Patient down ( Ie - sit is darkened room / listen to music / watch TV - If I in fact did the latter -  it would cause me to become further distressed and get me worked up even further - I do however need to be in a darkened room - and have EVERY BRAIN STIMULANT taken away from me - NO NOISE / LIGHT / SMELL / ETC  )
     
     
     
     
    Ohhh theres a thing - I also get odd smells when NO-ONE else does - Usually Cigarettes or Toast - Apparently this is indication of immence Brain Pressure !! - Yeah Yeah - I Knew that !!! and can be bloody irritating esp if 12pm at night and Im wandering round thinking my 12 year old has taken up smoking or that the 9 year old has decided she wants a lil snack !!!  I defo DONT think my 12 year old would ever smoke - but a lil snack could be on the cards - so - you can imagine I have to go check !!! = By this time I have woken everyone up - and everyone is out looking for cigarettes and burning toast !! = lol = NEVER TO BE FOUND !! - after about the fourth time I realised this was in fact my blinking head playing tricks !!


    OK - My Psychiological symptoms !!

    1) Think I can hear people shouting my name
    2) See 'things' running past me at speed - but there is nothing there
    3) Think things are coming AT me - Ie - When in a car - I think NO-ONE is going to stop - and I do actually scream !!
    4) Head Banging on Wall
    5) Crying - uncontrollable and Irrational ( also have Rational Crying !! )
    5a) Crying But just tears - no reason -
    5b) Crying because of Head Pressure
    6) Suicidal Thoughts ( Have taken one overdose - even looked up on PC how many to take - but - apparently - this wasn't enough as I am as Big - Weight wise - as I am - and I had far too much Cortisol and Adrenaline in my body for the mix I took to take hold - and so I was Toxic !! - But Not Lethal dose ! - So this then wound me right up too !! )
    7) Anyone looks at me 'funny' or Trys to be intimidating, Controlling, Calls me stupid, Makes me out to be Care in the Community, Is Rude, Doesn't say thank you etc etc - SO SO MANY DIFFERENT THINGS can start me off on a RAGE ! - TRIGGERS AS I CALL IT - and once this takes hold - within a split second - then NOTHING works to calm me down - NOTHING - except Diazepam - That Calms me - But never to the extent of making me sleep - I have before now taken 17 x 2mg Diazepam ( Over a five hour period ) and that has just brought me back to Normal levels again - Never sleepy !!


    8) Sometimes I want to be Social - and will chat to people in the street - Just even telling them they look nice, Other days I cant even leave my bedroom, Cant even see my own kids ....
    9) Anxious when anything NEW happens, actually - Anxious when anything AT ALL happens !!
    10) Hate people and Angry at anyone and everyone - for no reason
    11) The above but because I think something has been said or done against me or someone I know - or towards an eldery person or vunerable person or animal - Then I also become
    12) Confrontational and Aggressive
    13) Emotionally I think no-one wants me about - they would be better off if I wasn't there being a burden
    14) Can NEVER remember things - even my childhood is a blur - and even if it has just been said to me - BUT - I can remember odd things - like song lyrics I have not heard for years and years - after prompting I can also remember the odd thing - but - usually I cant remember ....
    15) Lack of Concentration - when I need to use my brain - ie talking on the phone to people I don't know - or reading - watching complex TV - I switch off
    16 ) Switching off is my brain shuts of and I zoom in on a particular thing and can do that thing for hours - like this blog - it is just being done and im not stoping till it is done - when  I think of what to put - my brain kinda has a POP - Kinda like a stitch popping - its very odd - also when concentrating on parts - the back of my head starts to Pulsate and hurt ... I cant even breathe while I am writing such long sentances as I am concentrating so much on getting down what I want too before I forget it !!!
    17) HYSTERIA - Total and utter laughing - not being able to stop - usually triggered by daft things - for instance - other people with laugh but then carry on - I have tears running down my face, I go red, cant breathe, the TV Usually has to stop as I disrupt everyone - and then everyone gets angry with me - and then that makes me worse - !!! I have been known to stop - and then tv starts again - and then they have to stop the tv again as I have started laughing again and that's it - cant stop again !! - I have been known to wake myself up laughing !!
    18) Mood Changes - One minute I can be inconsolable and the next in hysterics then the next trying to get the car keys off the ex so I can go and drive into a wall .... then laughing again - all within 10 minutes ...
    19) I am always tired - Unless im so tired and go to bed - then - I WAKE UP !!!! and cant sleep till ohhhh five or six hours later !!
    20) WHEWWW WHEWWWW - I CANT THINK OF A NUMBER 20 !!! - LOL - at the moment anyways !!!
    (20) - yes I did - UNCONTROLLABLE TOURETTES = !! - If I cant speak - I can swear - always

    These are just a few of the challenges I go through daily - and yeah - I can and have these symptoms - ALL OF THEM - on a daily basis - and YES - IT IS TO DO ENTIRELY WITH THE PITUITARY GLAND AND THE DODGY AMGYDULA GLAND THAT I HAVE - AND NOTHING TO DO WITH BEING MENTALLY PROBLEMATIC !!!!!



    DOCTORS AND GP'S AND CONSULTANTS NEED TO DO MORE WORK IN THIS AREA .... I have even just been told that I would be offered a Psychiatric Bed OR a Knock Out Drug for a few days JUST SO MY EX HUSBAND ( Who is suffering ALMOST as much as me ) COULD HAVE RESBITE AWAY FROM ME - This of course made me flip and caused the EX to take the kids and go and live in a Caravan for four days - hence me having the time to do this !!! - AND THAT IS FROM A MEDICAL PRACTITIONER WHO ALSO TOLD ME TO TRY YOGA TO CALM DOWN - She is lucky I didn't headbutt her !!!



    PITUITARY AWARENESS DAY SHOULD BE MADE PUBLIC AND EVERYONE - EVEN TAUGHT IN SCHOOLS - SHOULD BE MADE AWARE THAT THE ENTIRE BODY IS RUN BY THIS TINY GLAND ........ IT IS NOT TO BE TAKEN LIGHTLY !!

    OK OK - Talking gibberish now - so best stop - worn myself out !! Mentally = Not Physically -
    OHHH THERES

    20) Get so tired Mentally that I stutter and walk as though I am drunk - to the degree I could go in front of a car
    21) Makes up words - mid sentence - that mean nothing to anyone

    ok ok - the end !! - I do think I could go on even more though !!! lol !! xx








    Tuesday 9 June 2015

    AT LAST DEVELOPMENTS WITH THE PITUITARY BRAIN TUMOUR AND TODAY ....

    AT LAST DEVELOPMENTS WITH THE PITUITARY TUMOUR AND TODAY ....


    Basically saw SPECIALIST consultant for two long hours this am, ( At my house !! - and a Mental (!) Health Nurse too ! - money they are spending on me !! ) She is 100% sure that my Pituitary Gland is pressing on my Frontal Lobal Cortex, which is making me behave irrationally and uncontrollably, psychotically, and well all the lly's that there are !! ! ( She wouldn't have it that I AM PSYCHOTIC and I was upfront and told her I have always loved colouring in and making fart noises with my armpit, among the many other things ) 


    I have MOST of the above - and more because I have Problems to do with Hypothyroidism AND a Traumatised Amgydala Gland causing PTSD

    Being sent for my 9th MRI, and appt made to see a neuropsychological therapist and a neurosurgeon and a neuro psychiatrist - ( They apparently are different things !! ) I'm so rare !!!! Lmao, ANYONE WHO KNOWS ME could have told em that !!
    So, basically, any AGGRESSIVE OUTBURSTS, Screaming and Shouting, lack of concentration, memory loss, Weight, Eye Sight Loss, lack of patience - blar blar, please understand they ARE NOT ME, ( Ohhh The lack of Patience could well be me ! )  They are due to either a VERY Enlarged Pit - Or the Tumour !! Not sure which yet ! = 



    Ohhh maybe able to do surgery, going through nose, to remove Pituitary gland ( basically like petrol to engine, without it you shut down n eventually stop ) probably cant be controlled by drugs, as this has not worked before , and may not be able to operate as instability is to dangerous due to the Traumatic Amgdula Gland !, Ohh and if I do have Surgery I could Get Addisons - which is a adrenaline based disorder which is life threatening on its own !!
    Hope this sheds light for these that have been asking ???



    Ohhhhh and by NO MEANS DO I WANT SYMPATHY ........ Im just telling ya !
    CONFIDENCE AND POSITIVITY ALL THE WAY !!
    THE BELOW PICTURE - FOR ME - IS VERY POIGNANT - DONT BE LULLED INTO A FALSE SENCE OF SECURITY - I HAVE ONLY JUST BEGUN TO EMBRACE MY BRILLIANTNESS AND UNIQUENESS = BEWARE !!!




    ( That last 'statement was one I had written for my facebook friends- and I cant see the point in re writing it - when a simple cut and paste will surfice !! Please excuse me !! )

    TODAY - WELL - MY ' SYMPTOMS ' GO IN - WELL KINDA ANY WAY THEY WANT  - TOTALLY RANDOM !!!

    At the moment im on a HIGH - and Went to sleep at 3am - ( after KNOWING that I couldn't carry on as I was beginning to lagh hysterically at different videos on youtube !! ) So - I slept until 6.30am - woke - WIDE AWAKE - had my usuall breakfast of medication -  jumped up, made the bed - had a shower - Which Physically hurt - as Raising my arms above my head - hurts my head and causes me to go REALLY giddy - and loose sight and makes my head go all fuzzy = BUT _ Got through that without a scratch, and got dressed - my new Doggy newspaper top today !! - Posted on Twitter, Facebook, Google+ - and then came down to sort kids breakfast - let the dog out - make a coffee and sit down .... Easy !! 7.11am !! Start laughing as I have totally gone ridiculas and NEED TO KEEP GOING - I CANT STOP .....


    No arguments this morning - with anyone - so all good - went upstairs - with hoover, Made kids beds, and tidied their rooms - emptied all waste paper baskets, Polished EVERYWHERE - and then set about on the Bathroom - total overhawl = even getting a toothbrush to the taps !! = MUCH BETTER = Hoovered = and then = SORTED = AWWWWWW - LOOKING LOVELY - Now it was 8am !!!
    Came downstairs - hovering the stairs as I go = Put kettle on - and hovered the front room - inc the sofas - put all the cushions in their correct spot, yes each individual cushion HAS to go in the right spot - actually on sofas - ( I have a few cushions that are NOT allowed to be used (!)  and they go on the back of the sofa - ie - at the VERY TOP = so NO-ONE uses them to distort the pictures - one is a David Tennant Cushion - and the other is of a baby Bulldog ! USE THEM AND SUFFER THE WRATH !! ) ok - then I Polished the .... lol - EVERYTHING THAT STOOD STILL !! = Re-arranged everything so it was back in its PROPER spot - and then I was happy with the front room - ohhhhhh No - Empty the waste Bin ! - done - 8.20am

    Now one day while in a hurry
    He missed a lady's bin
    He hadn't gone but a few yards
    When she chased after him
    'What game do you think you're playing'
    She cried right from the heart
    'You've missed me...am I too late'
    'No... jump up on the cart'

    RANDOM I KNOW - BUT I KINDA LIKED IT !!

    Downstairs loo - empty bin, clean everything inc floor - on my hands and knees - - totally scrubbed and perfect - Kitchen - empty bins - ohhh the lot - I did everything and put the washing on - unloaded the dryer and folded everything up - put away - scrubbed table in conservatory - cleaned all of conservatory - re-arranged the shoe rack so it was neat = pmsl - I KNOW - I KNOW ! = and then PHEW = Sorted - I think - COFFEE MADE - and then decided I may as well make the dinner - so - fresh onions - red and yellow peppers, garlic - paprika - sweetcorn - and chicken - Jersey Royals washed and cut and placed in water - DINNER DONE - ANTHEA TURNER - EAT YOUR HEART OUT !!!



    VIDEO BLOG DONE for my channel and then - omg - the door went - it was the crisis team doctors as mentioned above !!! - lolololo - I MUST HAVE KNOWN !!! -
    I AM A GODDESS !!! THE HOUSE WAS PERFECT - SMELLING BEAUTIFUL AND I WAS UP - SHOWERED - DRESSED - MADE UP - EVERYTHING DONE - AND IT WAS 9AM !!! = PMSL - IM ON A HIGHHHHHHH !!



    That lasted till 11am - then I went and made the kids lunchbox's for tomorrow - and lunch for my ex for today !! - I wasn't hungry  yup - Fat as anything and Nothing to eat till 5pm this evening - and that's fairly normal - im not usually hungry unless I go out - then BACON SARNIES !!!!!! - YUMM !! Anyways that was me till the kids got home - then Cassia and I made another video blog - ex did dinner that just needed warming through - and then I was kinda sleepy - went upstairs as sound and lights started to flip me out - and the BANG I couldn't sleep - so - went on facebook and blogger and google+ / twitter etc etc - 1am - that's when I went to sleep = a fairy normal - HIGH DAY !!!! Fun Hey !!! xx