I was told the other day at my 2nd Appt ( Yes that's right - the 2nd ) after my Suicide Attempt almost three months ago - that the person that needs to see me - and that I have been REFERED to hasn't yet arrived down this ' neck of the woods ' - SO - The Psychiatrist (!) is going to HAVE TO - on my behalf - go cap in hand to the Maudsley Hospital - in front of a board of directors and funding people ? in LONDON to ask for them to see me PLEASEEEEEEEEEEEEEEE - This - The Plea I was told - Is going to happen in about three months time -
THEN They would decide IF I was a good enough candidate to be seen by THEIR consultants !!!
( FURIOUS IS NOT THE WORD !! !)
The Maudsley Hospital in Camberwell first opened in 1915, initially as a military hospital and then as a psychiatric hospital in 1923. To find out more about our services at the Maudsley Hospital services use our clinical service finder.
Institute of Psychiatry, Psychology and Neuroscience, King's College London
The Insititute of Psychiatry is also based on the Maudsley Hospital site. It is Europe's largest centre for research and post-graduate education in psychiatry, psychology, basic and clinical neuroscience, and is world renowned for the quality of our research.
THING IS - I HAVE A BLOODY PITUITARY TUMOUR - MY PROBLEM IS MEDICAL - AND NOT PSYCHIATRIC !!! = The Tumour is pressing on different parts of the brain - making it LOOK - like it is Psych - Yet - IT IS MEDICAL !! = So - It HAS TO BE TREATED MEDICALLY - Otherwise I will end up a Zombie on Anti Psychotic drugs !!!
OMG - IF I UNDERSTAND THIS - WHY CANT THE PROFESSIONALS !!!
ANYWAYS - I HAVE DONE A BIT OF DIGGING TODAY - AND NOW MY HEAD IS ABOUT TO STOP - BUT - HURRAHHHH = I HAVE ACCESSED THE WAY TO GO -
THIS IS AN EASY TO UNDERSTAND LOG OF HOW I DID IT -
( Requested by The Brain Tumour and Pituitary Organisation in Braintree )
I BASICALLY SENT THE BELOW LETTER / EMAIL - TO CONSULTANTS I FOUND OFF THE INTERNET BY PUTTING " PITUITARY CONSULTANTS, SPECIALISTS , ENDOCRINOLOGIST AND UNUSUAL EFFECTS OF PITUITARY TUMOURS " IN GOOGLE - IN DIFFERENT WAYS -
I GOT THE FOLLOWING INFORMATION BACK VIA EMAIL AND TWO PHONE CALLS ........
ALL SAYING THE SAME - DEMAND A GP REFERAL - IT IS YOUR RIGHT .....
I EMAILED THE INDIVIDUAL CONSULTANTS IN ALOT OF CASES AND THATS WHERE THE HELP CAME FROM -
TRY SECRETARIES AND YOU DONT GET AN ANSWER !! ( THEY ARE TOO BUSY !! )
THE BELOW LETTER IS WHAT I SENT - IN TYPICAL ABBY FASHION !! ;) !!
********************************************************************************
PLEASE EXCUSE THIS UNMITIGATED PLEA FOR HELP ....
I HAVE BEEN TOLD THERE IS NO FUNDING IN THE SOUTH EAST TO TREAT MY CONDITION ...
I HAVE BEEN DIAGNOSED VIA NUMEROUS MRI'S WITH A ENLARGED PITUITARY AND A TUMOUR ON THE STALK OF THE PITUITARY GLAND AND I HAVE BEE TOLD BY A PSYCHOLOGIST I HAVE A TRAUMATISED AMYGDALA GLAND ..... 2 YEARS AGO ..... Since then I have been shuvved from Pillar to Post !
I HAVE BEEN TOLD THAT SYMPTOMS WILL BE TREATED NOT THE CAUSE - BECAUSE NO-ONE KNOWS WHAT DAMAGE WILL BE DONE IF THE CAUSE IS TREATED ?
MANY SYMPTOMS ARE VERY VERY SIMILAR TO MENTAL HEALTH PROBLEMS
I KNOW IT IS NOT A MENTAL HEALTH ISSUE !!
I HAVE BEEN TOLD BY PSYCHOLOGISTS AND PSYCHIATRISTS ! ....
Just a few symptoms include ( in no order ) : HUGE WEIGHT GAIN, COLLAPSING VEINS, HYPOTHYROIDISM, BORDERLINE PCOS, MASSIVE MOOD SWINGS ( TOTALLY UNCONTROLLABLE and INTENCE - Can last five minutes or days - NEEDS DIAZEPAM TO CALM ME DOWN OTHERWISE I WILL CARRY ON - CANT CALM DOWN MYSELF AT ALL ) BRUISEING FOR NO REASON, EXCESSIVE TIREDNESS, HYPERACTIVE, MUSCLE WEAKNESS, IRREGULAR PERIODS, CONSTIPATION, EXTREME DIARRHOEA, LOSS OF PERIPHERAL VISION ( Goldman Fields tests done ) LACK OF CONCENTRATION ( If I read it HURTS AND MY HEAD SLOWS DOWN ) - HUGE MEMORY PROBLEMS - also I have to keep shutting my eyes otherwise it feel like there is too much information going in my head ...
I ALSO HAVE MY HEAD SHUT DOWN - NOT DUE TO PANIC ATTACK OR SOCIAL ANXIETY MAYBE JUST BECAUSE I HAVE BEEN TO BUSY ( Like go out for coffee and pop to a shop on way home !!!!! = THATS BUSY ) - MY HEAD SLOWS AND EVENTUALLY STOPS - SO I FALL ASLEEP - During this time I stutter and I cant get words I know to come out of my mouth, - I cant think - and the pain in my head, behind the eyes ( and travelling to the back of my head ) is IMMENCE - I have captured one of these 'Storms' on Camera - Please see link https://www.youtube.com/watch?v=G2uwxPQWMlI
Normally I have no trouble talking and can talk for England ! - BUT - When these 'Storms' Happen - that's it - EVERYTHING STOPS.
I AM NOW UNABLE TO LIVE A LIFE - IM AT HOME AND I TRY TO BE POSITIVE AND HAPPY - BUT I HATE MY LIFE - I CANT GO OUT WITHOUT SOMEONE - INCASE I GET ANGRY ( another side effect ) OR INCASE I GO GIDDY AND CANT STAND UP - I AM A BURDEN TO MY FAMILY AND NEED HELP
- I TRIED TO COMMIT SUICIDE A FEW WEEKS AGO - I AM DESPERATE FOR HELP
I HAVE NOW BEEN TOLD I NEED FUNDING AS THERE IS NO-ONE 'IN AREA' WHO WILL OR CAN TREAT ME ?? A PSYCHOLOGIST IS TRYING TO GET THIS FUNDING - ( I HAVE SEEN PSYCHOLOGISTS AND PSYCHIATRISTS WHO BOTH SAY IT IS A MEDICAL MATTER ALTHOUGH SIGNS ARE THERE FOR BIPOLAR - BUT IT IS NOT BIPOLAR ! - I HAVE ALSO GONE COUNCILLING - ( I talk to anyone and this isn't and issue - but have done what the doctors tell me - CBT Does NOT work - as my Mood swings are UNCONTROLLABLE and its as if I have a duel personality - like Jekyll and Hyde ) - I CANT EVEN BE LEFT ALONE WITH MY OWN CHILDREN IN CASE I OVER REACT AND GET ANGRY - AS I AM TOTALLY UNSURE WHAT WOULD HAPPEN - I DONT AND NEVER WANT TO HURT ANYONE - BUT IF SOMEONE COMES TOWARDS ME - I REACT ...
EVERYTHING IS UNINTENTIONAL - I DONT MEAN TO SAY OR DO ANYTHING BAD - BUT IT HAPPENS - AND WHEN I CANT THINK - ALL I CAN DO - OUT OF FRUSTRATION I BELIEVE - IS SWEAR .... WORDS THAT I NEVER EVER WOULD GENERALLY USE ... AND ANYWHERE IN FRONT OF ANYONE -
I AM NOT DEPRESSED - BUT GET TERRIBLY TERRIBLY SUICIDAL - I OVER REACT AND AM PARANOID AND THINK EVERYONE HATES ME - THEN IM FINE AGAIN AND KNOW THIS IS NOT THE CASE !!!
PLEASE PLEASE CAN YOU POINT ME IN SOME SORT OF DIRECTION
I AM DESPERATE
MANY THANKS
ABIGAIL COLLIN-BARRY
THESE ARE THE PLACES I HAVE SENT MY PLEA TOO :
| jkatz@hormoneconsultant.com Peter Bullock - Neurosurgery and Pituitary Specialist - LONDON Ashley Grossman - Endocrine Specialist - ( Immediate response - I am sorry to hear of your multiple problems, but I am afarid you could only be seen with a specific referral from your GP. Regards, Ashley Grossman OXFORD ) Pituitary Organisation. Sir Victor Horsley Department of Neurosurgery The National Hospital for Neurology and Neurosurgery 33 Queen Square London WC1N 3BG. Telephone: 020 3448 3176 Fax: 020 3448 3340 ( GP To refer ) Flynn, Dr Michael D - Kent & Canterbury Hospital - Speciality ENDOCRINE ! ( GP to refer ) natalie.ronan@uclh.nhs.uk - University College Hospital LONDON - ( RESPONCE : You can be referred to UCLH. As a patient, government policy allows you to make decisions about your healthcare. If your GP thinks that you need to be referred to a specialist, you can choose to be seen at any hospital in the country. This means that regardless of where you live, you have the right to see one of UCLH’s experts. - Your best Option Mrs Barry is to ask for a GP referral to : Dr Stephanie Baldeweg, Consultant Endcorinologist at UCLH and the National Hospital for Neurology and Neurosurgery - Good Luck FROM WHAT I CAN GATHER - I JUST HAVE TO DEMAND THAT MY GP REFERS ME - SO - I HOPE THIS HAS HELPED SOMEONE ELSE TOO - YOU DONT HAVE TO GO ALONG WITH WHAT YOUR TOLD - YOU CAN FIGHT TO BE SEEN BY WHO YOU WISH - YOU TAKE THE MATTERS INTO YOUR OWN HANDS AND DO SOME RESEARCH !! = THEN DEMAND TO SEE WHO YOU WANT !! IT'S YOUR RIGHT ! |
No comments:
Post a Comment