PLEA FOR HELP - PIT BRAIN TUMOUR - LATEST !

PLEA FOR HELP - PIT BRAIN TUMOUR - LATEST !

 

ALL OF THE BELOW COMMUNICATIONS ARE FROM THE PITUITARY FOUNDATION - AND MAY JUST HELP SOMEONE - SOMEWHERE - This is all a bit slap dash as my head not 100% atm - but - it should make some sence !! ;) = TO SOMEONE !! = LOL

 

 

 

Pituitary conditions

Pituitary disorders are considered rare. It is estimated that there are between 50,000 and 70,000 pituitary patients in the United Kingdom, which equates to 0.08% - 0.11% of the population.

The most common problem with the pituitary gland occurs when a benign tumour (used to describe a ‘growth’) also called an adenoma, develops. Pituitary tumours are not 'brain tumours'. The term benign is used by doctors to describe a swelling which is not cancerous.
Some pituitary tumours can exist for years without causing symptoms and some will never produce symptoms. Most pituitary tumours occur in people with no family history of pituitary problems and the condition is not usually passed on from generation to generation. Only very occasionally are tumours inherited - for example, in a condition known as multiple endocrine neoplasia (MEN1).
By far the most common type of tumour (about half of all cases) is the ‘non-functioning’ tumour. This is a tumour which doesn’t produce any hormones itself. It can cause headaches and visual problems or it can press on the pituitary gland, causing it to stop producing the required amount of one or more of the pituitary hormones. This effect can also happen by the treatment you are given for a tumour, such as surgery or radiotherapy. Alternatively, your pituitary tumour may begin to generate too much of one or more hormones.

Most common pituitary disorders

• Acromegaly
• Adult Growth Hormone Deficiency
• Craniopharyngioma
• Cushing's Disease
• Diabetes Insipidus
• Hypopituitarism
• Non-functioning tumours
• Prolactinoma

 

 

PLEASE - IF YOU ARE SUFFERING LIKE I AM - PLEASE GET IN TOUCH WITH THEM - THEY HAVE BEEN UTTERLY FABULOUS - AND HAVE REALLY HELPED ME ON MY WAY TO GETTING BETTER !!

IT MAY MAKE THINGS EASIER IF YOU START FROM THE BOTTOM AND WORK YOUR WAY UP ! - AS THE LAST EMAIL I HAVE RECIEVED - IS THE FIRST ONE I HAVE POSTED !!

 

TO GET IN TOUCH WITH THEM -

http://www.pituitary.org.uk/ 

https://twitter.com/Pituitary_org

https://www.facebook.com/pituitaryfoundation

 

PAT McBride has been utterly stupendous - and Alison the Endo Nurse so so helpful - and I am so angry at myself for not contacting them sooner ...

 

DO NOT SUFFER IN SILENCE - TAKE ACTION AND DO SOMETHING NOW ...

 

 

 

***************************************************************************************************************

 

Hi Abigail

 

I’m really sorry this has taken longer than I hoped. I had to ask several clinicians because I needed to know how to help you best.

 

Our medical committee members (including surgeon, psychologist and endocrine) who I asked have made the following comments:

 

The “storm” video shows what’s happening when she’s in extreme pain, along with the other symptoms that affect her at this time.  I agree with the other psychologists and psychiatrists that she says she has seen, that this is a medical problem which requires resolution of the cause, not simply treatment for the symptoms. To have survived for 2 years without adequate help and assistance is extraordinary.

 

Surgically, it’s not easy to understand more without a view of the scans. At Kings, Nick Thomas is the exceptional senior surgeon, if there's a surgical option, and is easy going sensible and approachable. Needs to push for appropriate endocrine referral – visual fields compromised!

 

Breaking chunks down on where to start, I suggest:

 

A.    Make appointment with your GP. Tell him/her that you’ve contacted The Pituitary Foundation for help – you may show your GP our committees’ comments.  Make a list of your symptoms you gave us to print off and show GP – I’ve tried to put these in order of severity/importance (bold text are symptoms that shouldn’t be ignored) but please do change them if I’m wrong:

 

1.    Loss of peripheral vision (Goldman Fields tests done)

2.    Head pain – excruciating (when does this happen, where is pain, how often happens and how long does it last?)

3.    Huge weight gain – not through overeating

4.    Hypothyroidism  

5.    Lack of concentration (If I read it hurts and my head ‘slows down’)

6.    Short term memory issues - also I have to keep shutting my eyes otherwise it feel like there is too much information going in my head  

7.    Diverse mood swings (Intense and uncontrollable -can last five minutes or days – taking Diazepam to calm me).

8.    Excessive tiredness to point of exhaustion

9.    Irregular periods

10.  Veins collapse

11.  Unexplained bruising

12.  Hyperactivity

13.  Muscle weakness

14.  Bowel irregular 

 

Show your GP the video you showed us (on your phone if possible). Your GP may not have seen you in such pain.

 

B.    Add to your list, the last health professionals you saw and approximate date and what they told you they would do

C.   All pituitary patients should have monitoring on a regular basis (6 monthly or annually) and it appears you have not been seen by Kings for two years. This should not have anything to do with funding – it is essential to at least monitor pituitary hormones, in a tertiary centre, appropriate replacements given and certainly your vision, which is compromised.

 

I am sadly aware in my 20 years of working with patients that somewhat unnecessary psychological signposting is given, instead of appropriate medical help. In a number of cases, as yours, the psychologists have insisted the patient needs medical care and NOT psychological help.

 

Please do let me know how you are and what’s happening. If you give me your phone number, I will call you later today or tomorrow.

 

Take care

Pat McBride
Head of Patient and Family Services

0117 370 1315

pat@pituitary.org.uk

The Pituitary Foundation

'Working to Support Pituitary Patients'

Any information provided is meant in general terms. If you are enquiring about a medical issue, we would like to emphasise that all patients are different and you should seek advice from your specialist or GP.

Internet communications may not be secure. The Pituitary Foundation is not responsible for their abuse by third parties nor for any alteration or corruption in transmission.

Company Limited by Guarantee

Registered in England No 3253584

Registered Charity No 1058968

 

 

 

From: abigail collin barry [mailto:abigailcollin@hotmail.com]
Sent: 27 July 2015 15:16
To: Helpline <Helpline@pituitary.org.uk>
Subject: RE: PLEASE HELP ME

 

Thank you so so much, I will do. Xxx

Sent from my Windows Phone

---

From: Helpline
Sent: ‎27/‎07/‎2015 14:38
To: abigail collin barry
Subject: RE: PLEASE HELP ME

Hi Abigail

 

We are still seeking advice but please do call our Endocrine Specialist nurse Alison tonight between 6pm – 9pm on 0117 370 1317

Best wishes 

 

Pat McBride
Head of Patient and Family Services

0117 370 1315

pat@pituitary.org.uk

The Pituitary Foundation

'Working to Support Pituitary Patients'

Any information provided is meant in general terms. If you are enquiring about a medical issue, we would like to emphasise that all patients are different and you should seek advice from your specialist or GP.

Internet communications may not be secure. The Pituitary Foundation is not responsible for their abuse by third parties nor for any alteration or corruption in transmission.

Company Limited by Guarantee

Registered in England No 3253584

Registered Charity No 1058968

 

 

 

 

 

From: abigail collin barry [mailto:abigailcollin@hotmail.com]
Sent: 24 July 2015 16:14
To: Helpline <Helpline@pituitary.org.uk>
Subject: RE: PLEASE HELP ME

 

Thank you so much, I have been in bed all day due to headaches n feeling so depressed and then so angry, I cant be around anyone, I can't live like this much more .... Thank you for trying to help.

Sent from my Windows Phone

---

From: Helpline
Sent: ‎24/‎07/‎2015 11:38
To: abigail collin barry
Subject: RE: PLEASE HELP ME

Hi Abigail

 

I’m going to see if I can seek medical advice here, and I will get back to you.

 

Many thanks  

 

Pat McBride
Head of Patient and Family Services

0117 370 1315

pat@pituitary.org.uk

The Pituitary Foundation

'Working to Support Pituitary Patients'

Any information provided is meant in general terms. If you are enquiring about a medical issue, we would like to emphasise that all patients are different and you should seek advice from your specialist or GP.

Internet communications may not be secure. The Pituitary Foundation is not responsible for their abuse by third parties nor for any alteration or corruption in transmission.

Company Limited by Guarantee

Registered in England No 3253584

Registered Charity No 1058968

 

 

 

 

 

From: abigail collin barry [mailto:abigailcollin@hotmail.com]
Sent: 23 July 2015 22:33
To: Helpline <Helpline@pituitary.org.uk>
Subject: RE: PLEASE HELP ME

 

Thank you so so much for getting in touch.
I have had Kings do one set of full blood tests and one set of spittle cortisol tests, I was not informed of the results !!
They discharged me saying I would need alot of exploration and they would rather have the GP treat the symptoms rather than the cause.
I have since been down the psych route, MANY TIMES, and each time they say it is medical.
I was told by the Crisis Team consultant after taking an overdose s few weeks ago that she would organise full bloods and MRI and another psych examination.... None of which were done.
I am still waiting to be allocated a support worker, as there is no body available at the moment...
I have since found out I can demand to see a endo or pituitary specialist of my choosing, but as I have already been seen by Kings, my GP is under the illusion I should try Yoga and paracetamol  !!!!!!!!!!
Thank you so much for trying to help.

Sent from my Windows Phone

---

From: Helpline
Sent: ‎23/‎07/‎2015 17:03
To: abigail collin barry
Subject: RE: PLEASE HELP ME

Dear Abigail

 

Thank you for getting in touch with us.

 

Firstly, can you let me know if you are currently being treated for deficient or over active hormones, because of your tumour? And by an endocrinologist who is experienced in pituitary.

 

I don’t understand about funding not being available – this must be essential for diagnosing your pituitary condition accurately, and ongoing treatment. Has an expert pituitary surgeon seen your MRI scans?

 

I’ve looked at your video – have you shown your GP this?

 

Please do get back to me and I will try to help further.

 

Kind regards

 

Pat McBride

Head of Patient & Family Services

 

 NORMAL 10 YEAR OLD

 

 NORMAL 10 STONE  27 YEAR OLD !

 

 20 STONE 40 YEAR OLD !

 

 

From: abigail collin barry [mailto:abigailcollin@hotmail.com]
Sent: 23 July 2015 11:50
To: Helpline <Helpline@pituitary.org.uk>
Subject: PLEASE HELP ME

 

PLEASE EXCUSE THIS UNMITIGATED PLEA FOR HELP ....
I HAVE BEEN TOLD THERE IS NO FUNDING IN THE SOUTH EAST TO TREAT MY CONDITION ...
I HAVE BEEN DIAGNOSED VIA NUMEROUS MRI'S WITH A ENLARGED PITUITARY AND A TUMOUR ON THE STALK OF THE PITUITARY GLAND AND I HAVE BEE TOLD BY A PSYCHOLOGIST I HAVE A TRAUMATISED AMYGDALA GLAND ..... 2 YEARS AGO ..... Since then I have been shuvved from Pillar to Post !
I HAVE BEEN TOLD THAT SYMPTOMS WILL BE TREATED NOT THE CAUSE - BECAUSE NO-ONE KNOWS WHAT DAMAGE WILL BE DONE IF THE CAUSE IS TREATED ?
MANY SYMPTOMS ARE VERY VERY SIMILAR TO MENTAL HEALTH PROBLEMS
I KNOW IT IS NOT A MENTAL HEALTH ISSUE !!
I HAVE BEEN TOLD BY PSYCHOLOGISTS AND PSYCHIATRISTS ! ....
 
Just a few symptoms include ( in no order ) : HUGE WEIGHT GAIN, COLLAPSING VEINS, HYPOTHYROIDISM, BORDERLINE PCOS, MASSIVE MOOD SWINGS ( TOTALLY UNCONTROLLABLE and INTENCE - Can last five minutes or days - NEEDS DIAZEPAM TO CALM ME DOWN OTHERWISE I WILL CARRY ON - CANT CALM DOWN MYSELF AT ALL  ) BRUISEING FOR NO REASON, EXCESSIVE TIREDNESS, HYPERACTIVE, MUSCLE WEAKNESS, IRREGULAR PERIODS, CONSTIPATION, EXTREME DIARRHOEA, LOSS OF PERIPHERAL VISION ( Goldman Fields tests done ) LACK OF CONCENTRATION ( If I read it HURTS AND MY HEAD SLOWS DOWN )  - HUGE MEMORY PROBLEMS - also I have to keep shutting my eyes otherwise it feel like there is too much information going in my head ...
 
I ALSO HAVE MY HEAD SHUT DOWN - NOT  DUE TO PANIC ATTACK OR SOCIAL ANXIETY MAYBE JUST BECAUSE I HAVE BEEN TO BUSY ( Like go out for coffee and pop to a shop on way home !!!!! = THATS BUSY ) - MY HEAD SLOWS AND EVENTUALLY STOPS - SO I FALL ASLEEP - During this time I stutter and I cant get words I know to come out of my mouth, - I cant think - and the pain in my head, behind the eyes ( and travelling to the back of my head ) is IMMENCE - I have captured one of these 'Storms' on Camera - Please see link https://www.youtube.com/watch?v=G2uwxPQWMlI
Normally I have no trouble talking and can talk for England ! - BUT - When these 'Storms' Happen - that's it - EVERYTHING STOPS.
I AM NOW UNABLE TO LIVE A LIFE - IM AT HOME AND I TRY TO BE POSITIVE AND HAPPY - BUT I HATE MY LIFE - I CANT GO OUT WITHOUT SOMEONE - INCASE I GET ANGRY ( another side effect ) OR INCASE I GO GIDDY AND CANT STAND UP - I AM A BURDEN TO MY FAMILY AND NEED HELP
- I TRIED TO COMMIT SUICIDE A FEW WEEKS AGO - I AM DESPERATE FOR HELP
I HAVE NOW BEEN TOLD I NEED FUNDING AS THERE IS NO-ONE 'IN AREA' WHO WILL OR CAN TREAT ME ?? A PSYCHOLOGIST IS TRYING TO GET THIS FUNDING - ( I HAVE SEEN PSYCHOLOGISTS AND PSYCHIATRISTS WHO BOTH SAY IT IS A MEDICAL MATTER ALTHOUGH SIGNS ARE THERE FOR BIPOLAR - BUT IT IS NOT BIPOLAR ! - I HAVE ALSO GONE COUNCILLING - ( I talk to anyone and this isn't and issue - but have done what the doctors tell me - CBT Does NOT work - as my Mood swings are UNCONTROLLABLE and its as if I have a duel personality - like Jekyll and Hyde ) - I CANT EVEN BE LEFT ALONE WITH MY OWN CHILDREN IN CASE I OVER REACT AND GET ANGRY - AS I AM TOTALLY UNSURE WHAT WOULD HAPPEN - I DONT AND NEVER WANT TO HURT ANYONE - BUT IF SOMEONE COMES TOWARDS ME - I REACT ...
EVERYTHING IS UNINTENTIONAL - I DONT MEAN TO SAY OR DO ANYTHING BAD - BUT IT HAPPENS - AND WHEN I CANT THINK - ALL I CAN DO - OUT OF FRUSTRATION I BELIEVE - IS SWEAR .... WORDS THAT I NEVER EVER WOULD GENERALLY USE ... AND ANYWHERE IN FRONT OF ANYONE -
I AM NOT DEPRESSED - BUT GET TERRIBLY TERRIBLY SUICIDAL - I OVER REACT AND AM PARANOID AND THINK EVERYONE HATES ME - THEN IM FINE AGAIN AND KNOW THIS IS NOT THE CASE !!!
PLEASE PLEASE CAN YOU POINT ME IN SOME SORT OF DIRECTION
I AM DESPERATE
MANY THANKS
ABIGAIL COLLIN-BARRY

 

 

Sent from Windows Mail

 

 

Non-functioning tumour

By far the most common type of tumour of the pituitary gland (about half of all cases) is the 'non-functioning' tumour. This is a tumour which does not produce any hormones itself.

It can cause headaches and visual problems or it can press on the pituitary gland, causing it to stop producing the required amount of one or more of the pituitary hormones, leading to hypopituitarism.

Typical symptoms ( I SUFFER ALL OF THE BELOW ! )

• excessive tiredness and decreased energy
• muscle weakness
• reduced body hair
• irregular periods (Oligomenorrhoea) or loss of normal menstrual function (Amenorrhoea) - females
• decrease in sex drive
• weight gain
• increased sensitivity to cold
• constipation
• dry skin
• pale appearance
• low blood pressure and dizziness on standing (postural hypotension)
• headaches
• vision disturbance

Each of the symptoms described above occur in response to the loss of one or more of the hormones produced by the pituitary. Decrease in the production of only one hormone would not lead to all the symptoms described above. )

DO SOMETHING ABOUT IT !!! XXX

 

 

PLEA FOR HELP - PITUITARY BRAIN TUMOUR - NO FUNDING ???????

PLEA FOR HELP - PITUITARY BRAIN TUMOUR - NO FUNDING ???????

I was told the other day at my 2nd Appt ( Yes that's right - the 2nd ) after my Suicide Attempt almost three months ago - that the person that needs to see me - and that I have been REFERED to hasn't yet arrived down this ' neck of the woods '  - SO - The Psychiatrist (!) is going to HAVE TO - on my behalf - go cap in hand to the Maudsley Hospital - in front of a board of directors and funding people ? in LONDON to ask for them to see me PLEASEEEEEEEEEEEEEEE - This - The Plea I was told - Is going to happen in about three months time -
THEN They would decide IF I was a good enough candidate to be seen by THEIR consultants !!!
( FURIOUS IS NOT THE WORD !! !)
The Maudsley Hospital in Camberwell first opened in 1915, initially as a military hospital and then as a psychiatric hospital in 1923. To find out more about our services at the Maudsley Hospital services use our clinical service finder.
Institute of Psychiatry, Psychology and Neuroscience, King's College London
The Insititute of Psychiatry is also based on the Maudsley Hospital site. It is Europe's largest centre for research and post-graduate education in psychiatry, psychology, basic and clinical neuroscience, and is world renowned for the quality of our research.

THING IS - I HAVE A BLOODY PITUITARY TUMOUR - MY PROBLEM IS MEDICAL - AND NOT PSYCHIATRIC !!! = The Tumour is pressing on different parts of the brain - making it LOOK - like it is Psych - Yet  - IT IS MEDICAL !! = So - It HAS TO BE TREATED MEDICALLY - Otherwise I will end up a Zombie on Anti Psychotic drugs !!!
OMG - IF I UNDERSTAND THIS - WHY CANT THE PROFESSIONALS !!!

ANYWAYS - I HAVE DONE A BIT OF DIGGING TODAY - AND NOW MY HEAD IS ABOUT TO STOP - BUT - HURRAHHHH = I HAVE ACCESSED THE WAY TO GO -

THIS IS AN EASY TO UNDERSTAND LOG OF HOW I DID IT -
( Requested by The Brain Tumour and Pituitary Organisation in Braintree )


I BASICALLY SENT THE BELOW LETTER / EMAIL - TO CONSULTANTS I FOUND OFF THE INTERNET BY PUTTING " PITUITARY CONSULTANTS, SPECIALISTS , ENDOCRINOLOGIST AND UNUSUAL EFFECTS OF PITUITARY TUMOURS " IN GOOGLE - IN DIFFERENT WAYS -
I GOT THE FOLLOWING INFORMATION BACK VIA EMAIL AND TWO PHONE CALLS ........
ALL SAYING THE SAME - DEMAND A GP REFERAL - IT IS YOUR RIGHT .....

I EMAILED THE INDIVIDUAL CONSULTANTS IN ALOT OF CASES AND THATS WHERE THE HELP CAME FROM -
TRY SECRETARIES AND YOU DONT GET AN ANSWER !! ( THEY ARE TOO BUSY !! )
THE BELOW LETTER IS WHAT I SENT - IN TYPICAL ABBY FASHION !! ;) !!



********************************************************************************




PLEASE EXCUSE THIS UNMITIGATED PLEA FOR HELP ....

I HAVE BEEN TOLD THERE IS NO FUNDING IN THE SOUTH EAST TO TREAT MY CONDITION ...

I HAVE BEEN DIAGNOSED VIA NUMEROUS MRI'S WITH A ENLARGED PITUITARY AND A TUMOUR ON THE STALK OF THE PITUITARY GLAND AND I HAVE BEE TOLD BY A PSYCHOLOGIST I HAVE A TRAUMATISED AMYGDALA GLAND ..... 2 YEARS AGO ..... Since then I have been shuvved from Pillar to Post !

I HAVE BEEN TOLD THAT SYMPTOMS WILL BE TREATED NOT THE CAUSE - BECAUSE NO-ONE KNOWS WHAT DAMAGE WILL BE DONE IF THE CAUSE IS TREATED ?

MANY SYMPTOMS ARE VERY VERY SIMILAR TO MENTAL HEALTH PROBLEMS
I KNOW IT IS NOT A MENTAL HEALTH ISSUE !!
I HAVE BEEN TOLD BY PSYCHOLOGISTS AND PSYCHIATRISTS ! ....
 
Just a few symptoms include ( in no order ) : HUGE WEIGHT GAIN, COLLAPSING VEINS, HYPOTHYROIDISM, BORDERLINE PCOS, MASSIVE MOOD SWINGS ( TOTALLY UNCONTROLLABLE and INTENCE - Can last five minutes or days - NEEDS DIAZEPAM TO CALM ME DOWN OTHERWISE I WILL CARRY ON - CANT CALM DOWN MYSELF AT ALL  ) BRUISEING FOR NO REASON, EXCESSIVE TIREDNESS, HYPERACTIVE, MUSCLE WEAKNESS, IRREGULAR PERIODS, CONSTIPATION, EXTREME DIARRHOEA, LOSS OF PERIPHERAL VISION ( Goldman Fields tests done ) LACK OF CONCENTRATION ( If I read it HURTS AND MY HEAD SLOWS DOWN )  - HUGE MEMORY PROBLEMS - also I have to keep shutting my eyes otherwise it feel like there is too much information going in my head ...

I ALSO HAVE MY HEAD SHUT DOWN - NOT  DUE TO PANIC ATTACK OR SOCIAL ANXIETY MAYBE JUST BECAUSE I HAVE BEEN TO BUSY ( Like go out for coffee and pop to a shop on way home !!!!! = THATS BUSY ) - MY HEAD SLOWS AND EVENTUALLY STOPS - SO I FALL ASLEEP - During this time I stutter and I cant get words I know to come out of my mouth, - I cant think - and the pain in my head, behind the eyes ( and travelling to the back of my head ) is IMMENCE - I have captured one of these 'Storms' on Camera - Please see link https://www.youtube.com/watch?v=G2uwxPQWMlI
Normally I have no trouble talking and can talk for England ! - BUT - When these 'Storms' Happen - that's it - EVERYTHING STOPS.

I AM NOW UNABLE TO LIVE A LIFE - IM AT HOME AND I TRY TO BE POSITIVE AND HAPPY - BUT I HATE MY LIFE - I CANT GO OUT WITHOUT SOMEONE - INCASE I GET ANGRY ( another side effect ) OR INCASE I GO GIDDY AND CANT STAND UP - I AM A BURDEN TO MY FAMILY AND NEED HELP

- I TRIED TO COMMIT SUICIDE A FEW WEEKS AGO - I AM DESPERATE FOR HELP

I HAVE NOW BEEN TOLD I NEED FUNDING AS THERE IS NO-ONE 'IN AREA' WHO WILL OR CAN TREAT ME ?? A PSYCHOLOGIST IS TRYING TO GET THIS FUNDING - ( I HAVE SEEN PSYCHOLOGISTS AND PSYCHIATRISTS WHO BOTH SAY IT IS A MEDICAL MATTER ALTHOUGH SIGNS ARE THERE FOR BIPOLAR - BUT IT IS NOT BIPOLAR ! - I HAVE ALSO GONE COUNCILLING - ( I talk to anyone and this isn't and issue - but have done what the doctors tell me - CBT Does NOT work - as my Mood swings are UNCONTROLLABLE and its as if I have a duel personality - like Jekyll and Hyde ) - I CANT EVEN BE LEFT ALONE WITH MY OWN CHILDREN IN CASE I OVER REACT AND GET ANGRY - AS I AM TOTALLY UNSURE WHAT WOULD HAPPEN - I DONT AND NEVER WANT TO HURT ANYONE - BUT IF SOMEONE COMES TOWARDS ME - I REACT ...

EVERYTHING IS UNINTENTIONAL - I DONT MEAN TO SAY OR DO ANYTHING BAD - BUT IT HAPPENS - AND WHEN I CANT THINK - ALL I CAN DO - OUT OF FRUSTRATION I BELIEVE - IS SWEAR .... WORDS THAT I NEVER EVER WOULD GENERALLY USE ... AND ANYWHERE IN FRONT OF ANYONE -

I AM NOT DEPRESSED - BUT GET TERRIBLY TERRIBLY SUICIDAL - I OVER REACT AND AM PARANOID AND THINK EVERYONE HATES ME - THEN IM FINE AGAIN AND KNOW THIS IS NOT THE CASE !!!

PLEASE PLEASE CAN YOU POINT ME IN SOME SORT OF DIRECTION

I AM DESPERATE

MANY THANKS

ABIGAIL COLLIN-BARRY








THESE ARE THE PLACES I HAVE SENT MY PLEA TOO :

jkatz@hormoneconsultant.com Peter Bullock - Neurosurgery and Pituitary Specialist - LONDON Ashley Grossman - Endocrine Specialist - ( Immediate response - I am sorry to hear of your multiple problems, but I am afarid you could only be seen with a specific referral from your GP. Regards, Ashley Grossman OXFORD ) Pituitary Organisation. Sir Victor Horsley Department of Neurosurgery The National Hospital for Neurology and Neurosurgery 33 Queen Square London WC1N 3BG. Telephone: 020 3448 3176 Fax: 020 3448 3340 ( GP To refer ) Flynn, Dr Michael D - Kent & Canterbury Hospital - Speciality ENDOCRINE ! ( GP to refer ) natalie.ronan@uclh.nhs.uk - University College Hospital LONDON - ( RESPONCE : You can be referred to UCLH.  As a patient, government policy allows you to make decisions about your healthcare. If your GP thinks that you need to be referred to a specialist, you can choose to be seen at any hospital in the country. This means that regardless of where you live, you have the right to see one of UCLH’s experts. - Your best Option Mrs Barry is to ask for a GP referral to : Dr Stephanie Baldeweg, Consultant Endcorinologist at UCLH and the National Hospital for Neurology and Neurosurgery - Good Luck FROM WHAT I CAN GATHER - I JUST HAVE TO DEMAND THAT  MY GP REFERS ME - SO - I HOPE THIS HAS HELPED SOMEONE ELSE TOO - YOU DONT HAVE TO GO ALONG WITH WHAT YOUR TOLD - YOU CAN FIGHT TO BE SEEN BY WHO YOU WISH - YOU TAKE THE MATTERS INTO YOUR OWN HANDS AND DO SOME RESEARCH !! = THEN DEMAND TO SEE WHO YOU WANT !! IT'S YOUR RIGHT !

HOW TO KEEP POSITIVE WITH A PITUITARY BRAIN TUMOUR / PTSD / HYPOTHYROIDISM !

HOW TO KEEP POSITIVE WITH A
PITUITARY BRAIN TUMOUR / PTSD / HYPOTHYROIDISM !

HAHAHAHAHAH - What a great enticing header I write as I literally sit here dribbling - ohhh - The dribbling its getting worse - but soooo funny as I don't know im doing it till its dripping - and ohh if your sat opposite me eating your bacon sarnie - WHEWWW WHEWWW - FREE BACON SARNIE FOR ME !!! - lmao - Well - what a title and what an opener- bet you wernt expecting that - but- with me - expect the unexpected !! - ALWAYS !!

Right - this blog - ( I thought id do another as I havnt done one for a while and I thought id best do one as I would get out of practise - This one isn't going to be a rant as my last one was about " Stereotyping ! "- I sounded like I was back at school quoting this and that - ohhh but I did enjoy it !! - BUT This post is going to be about How I TRY to keep myself Positive with the life that I have ..... OK OK - BACKGROUND- ( Very short - as I know - I know I do ramble on ! ) FOR THOSE THAT DONT KNOW ME !! : I am a 40  year old Hypothyroid sufferer - Ohhhhhh -- I don't like the useage of the word sufferer = people in Etheopia are sufferer's, Not me = Can I say that ? - Is that PC - Ohh well - just done it ! - anyways I have Hypothyroidism, PTSD and a Bulky Pituitary Gland - WITH a Tumour that comes and goes - on the Stalk of the Pit Gland ( Brain ) causing my brain to shut down if too much info goes in !! pmsl - REALLY !! - im not joking - my whole head just gives up - and I slur my speech - make up words - go giddy - cant think - cant stand - Ohhhhhhhh a whole host of symptoms !! - each as great as the first !! Its realy rather SHIT - BUT - I TRY - when im me - TO be POSITVE AND FRIENDLY AND OPEN AND HONEST AND UNIQUE - ohhh im that anyways ! - ok - ermmmm - INSPIRATIONAL !! = YES I like that - I wanna be INSPIRATIONAL !! ;) !!

Well - before I carry on - my week goes something like this - : Daily : Wake up , Take Tablets, kids up, shower - GO GIDDY AND BOY ITS PAINFUL LIFTING MY HANDS ABOVE MY HEAD - Get out of shower - 4 minutes is ALL that is needed !! = Make up on as I dry - clothes on - get kids their orange juice downstairs and a pain au chocolate n apple, lunchboxes in school bags - make COFFEE - ( NEVER EVER TEA ) Clean Kittens out ( I have 2 x 10 week old Kittens atm ! )

 and let PeggatyPawz out in the garden to take in the air and wake everyone in the neighbour hood up barking !! - awwww - she gotta have some entertainment too

!!! SHOUT at Tom again - Get shouted back at - argument - Take Diazepam - Sit down with coffee - Head now spinning - quick convo while kids get ready and stuff - say goodbye - then they have been whisked off to school by Bus or Car - Peace !! = I then usually wait til my head is ok - then Hoover - make dinner - dust - sort out and tidy bedrooms - washing - empty bins and anything else that needs doing - THEN COFFEE AGAIN !!

 - By this time my head is well and truly GONE !! - I cant think or concentrate on anything !! I just 'do' !! ...... Usually I go on the computer :

POSITIVITY AND MOTIVATION BEGINS !!!

I have my own YouTube Channel, and Goggle+ ATM 93thousand VIEWS !! ) Pinterest Boards, Twitter and Facebook ( Mainly for friends and family is my facebook account )
Mostly under Abigail Barry or PeggatyPawz if you wanna have a peek !! BUT .... Remember - Some people may NOT like what they see - and may Disagree with what I am doing - I am in a Body Positivity Movement - Basically Confident FAT people - Giving Help guidance and support to UnPostiive Fat People - and OMG IT WORKS - I have had hundreds of lovely lovely emails thanking me for doing what I do - so - NO NEGATIVITY - I LIKE WHAT I DO AND I AM HELPING PEOPLE - SO - ALL GOOD !! - ( Lmao - Nothing Pornographic mother - don't worry !! )- Dignity still intact !! )

On YouTube - I have found a group and we call ourselves Coens Angels - People who engage and entice guys who like a BBW ( Big Beautiful Woman ) to get out there and give compliments and tell BBW's that they are gorgeous- TO SHOW SUPPORT AND POSITIVITY AMONG THE RANKS - Our Guide/Mentor if you like is Coen Naninck of Curvy Shrine - YouTube Channel as below  https://www.youtube.com/channel/UCiYGkklFXidfFl-k16NqRLw - His Philosophy is "  In today’s world women have to be thin to be “beautiful”. On this YouTube channel and the website curvyshrine.com you can learn that curves can be found all throughout nature and that women of different shapes and sizes are beautiful and attractive " ..... He is outstanding and such a lovely individual and has helped many many women relalise their true Potential = Yeah Yeah - OK - I do have a soft spot for him - but he knows this !! ;) !! lol - !! Check him out !!

I too have my own channel make make videos almost daily and now have 64 subscribers and over 8 thousand views which isnt bad in over a month - On my channel - I talk about me - RATHER ALOT !! - and the kittens get involved - and I also chat about Brain Tumours and Body Confidence and all sorts of waffle really, I don't edit my videos- what you see is what you get - and yes - it has been known for me to break the camera - on camera - and now I have to hold the bloody thing !! but all good ! - I have a fantastic response - so all good - I also post things I like - Videos by others - ie songs - or funny things ( Aaron Crascall / Pigeon Prank / Disco Boy / Home made Car Lip sync Videos  or inspirational doings - all good stuff ... )

On My Twitter and Google accounts - omg - I post everything and anything - as positive as I can - and information I find helpful and informative and funny things - loads of animal stuff too !! OMG - and Philosophical stuff and inspirational quotes - just stuff to make people smile - and once again - I have loads of great comments and loads of lovely replies - ohhh that's the same thing - lmao ... I do love both Twiter and Google+ But - OMG - They are a lot for me to maintain - and I seem to be taking ages to find different material to post for other people to feel good about themselves- lmao - maybe that's a bit of OCD ?? But - I love it , only thing - once  get on the computer - my head zones out - and I just write ( like this ) or talk - and I often forget what im talking about or thinking and come out with absolute rubbish - so - thank god for some of my followers who have become friends and tell me to " Take that video / blog / message off Abs as it makes no sence " - lmao !! BUT - usualy = I leave stuff on - so people can see the difference in my posts = when im well and then when im not so well - then it helps them too !! I have had brain Charities saying my posts are INVALUABLE - yes - invaluable - me !! - to others with my condition - although = they havnt heard as yet of a Bulky Pit and a Cyclical Pit Tumour, PTSD and Hypothyroidism all at once !!- GO ME - RARITY ! Ohhh I have been know to wind the odd person up tto - and have the odd fight !! ;) !

 

Ohhh I have been know to wind the odd person up tto - and have the odd fight !! ;) !

 

 

OK - NOW im knackered - ive passed about 5 hours on the computer and havnt had breakfast or lunch - or remembered to go to the loo - so - I usually have to rush to the loo - then that's it - im done - my head stops - and I HAVE TO GO TO BED - I sleep then for maybe 2 hours - exhausted = Then get up - chat to kids - Ohhh ok - I say chat to kids - but I cant usually think of what to say - so they tel me about their day - I never remember and usually end up asking later on - and really wind them up - then I have dinner- whoever is here - ie Alan / Mum / Dad / Gaye wil have warmed the dinner - ( Or in mum and dads case made and brought it round with them !! - don't think they trust my food !! !) and then - If I havnt 'Stormed' ( A MAD time where I get VERY VERY VERY VERY ARGUEMENTATIVE AND SO VERY ANGRY AND AGGRESSIVE ) and taken myself back upstairs and HAVE to take a whole handful of Diazepam to calm down as its a over stimulation of Hormone that has caused me to be sooo Volatile !  - If I am ok I will eat dinner - ( Often I go without ! ) YS YES YES - IM HUGE AND FAT - BUT NOT BECAUSE OF OVEREATING ! - Its because my body is in starvation mode and EVERYTHING I do eat gets put on in fat - AND I am no longer able to do excersise as the over exertion does my head in !! so - no chance of loosing - Its such a pain in the arse as I did used to do 5x2hour sessions at the gym then Aqua - until I had a 'Storm' there and then was told I couldn't work out there any more as they were not insured for my particular condition .... Mind you - Now - I don't think I could - as it would set my head off just thinking about it - but - when I was their for the Over a year that I did - I LOVED IT !! ( Shhhhhhhhhh and all those fit guys - yummy !! )

Anyways - Now its washing up time - and I ALWAYS HAVE TO WASH UP - whether im ok or not - as cant stand having dirty plates in the sink - so - I could be stood there in floods of tears as it actually physically hurts to use my arms - BUT - I MAKE MYSELF DO IT - I don't want to be a Burden to anyone ... Ok - Ok - I put stuff away wet - Shoot me - But - By this point I cant dry anything - and TBH I cant be bothered !! = so - the stuff goes away wet and I then make Coffee - ohh and kettle on - and lunch boxes are now on a timer to have ready before the kettle boils - OHHHH DONT JUDGE ME !! - Sandwich, 3 x fruit things - Drink and Yogurt ! = DONE !! in fridge - and sit down for the TV - The only things in insist on watching ( Unless im ill - ) are Eastenders and Holby !! - LOVE EM !! - and omg sexy doctors - yummy !!

 Harry and Raf - Yummy !

Then - 9pm comes and I go to bed - usualy before the kids - lmao - but- 9pm - and that's it- I go upstairs TOTALY EXHAUSTED AND EYES DROOPING - wash - teeth - loo - Bed and BOING- IM WIDE AWAKE - and could be until 2am !!= ITS SOOOOOOOOOOOOOOOOOOOOOO ANNOYING = But apparently a normal thing for people who have what I do - My brain just starts on over drive and that's it  - im off !! ........ Then - When I think I can sleep - I put my phone down - ( I usually go on the internet ) and then go straight to sleep - But - I always KNOW when im going to be able to sleep !! - Then I may wake in the middle of the night lmao - ok ok - morning - for the loo again - about 4am = then Cas will come in at around 6am !! - Could say my sleep is shot to bits !!

So - well this Blog has gone onto A DAY IN THE LIFE !!! - lmao - and that's it - that's what I do - UNLESS - Mum or Gaye Or Alan ( occasionally ) or friends take me out for coffee ! ( Mum and Gaye do also take me shopping !! which I love - but I have to keep close to them and not be too busy - once again if there is too many people - its a brain overload - not that I care less about a lot of people - its just my brain cant cope .... Then I just go giddy and head shuts down and slury speech and omg then I start crying and holding my head and look a right loon ! !! - Nothing helps until literally im in a dark room and ALL stimulas has been taken away !! .... Then my head calms - unless I take loads of Diazepam again !! Then I may calm down !! )

So - that's about it - The life I havnt got anymore ( Work and Animals and Friends and stuff ) has been taken over with giving positivity to others - and that does keep me entertained and HELPS ME COPE WITH WHAT I DO HAVE !!! = So - The moral of the story - Be Positive and Motivational to others - and in return IT DOES HELP YOU !!! .......

STEREOTYPING - OMG - I HATE STEROTYPING

STEREOTYPING - OMG - I HATE STEROTYPING

Before you read my Blog - PLEASE watch this link below - it's only two minutes - and I do so hope it may change your view or make you more passionate about STOPPING STEROTYPING FOREVER !! Just have a quick look - and come back to me !!

http://share100.goingviralposts.biz/coca-cola-campaign-aims-to-remove-labels/

NOW - HOW GOOD WAS THAT !! - Ive posted this link everywhere - and so want it too go Viral - It deserves too - Its just fabulous and the mastermind behind it it a brainbox -
Now - People that KNOW me - know I have a thing about Stereotypes - I get stereotyped DAILY - and it so doesn't bother me - ( Mmmmmm - I don't think it does !! ) Ive been called a Lesbian, Common, Aggressive, Moody, Vain ( hahahahha me vain - ohhhh ok I take this one !! - SOMETIMES !! ) Changeable, Self Centered, Superficial, Grumpy - OHHH THE LIST GOES ON !! Literally - it does go on and on - BUT - There is always a reason behind MY behaviour - mainly due to my tumour - BUT Stereotyping appearance  (such as hygiene and selection of clothes, hair, Tattoos etc) are functions of personality, Do we have the right to question someones Personality ?? Someones Physical appearance affects their happiness, self-esteem, and success - Have we the right to judge ?? I BELIEVE NOT ...

This even goes as far as Children - yes = it starts right at the beginning - Good-looking children are treated as social superiors, NO NO - THINK ABOUT IT - THEY REALLY ARE - because in society, stereotype says that popular people are good looking. Conversely, children who are deemed to be not as attractive are often treated as inferior and daft in comparison to the other children. Think about it - You know someone who this has happened too - I can guarantee it.

 

 

I found this study - and OMG its fun - and the emphasis is on names - STEROTYPEING AT ITS BEST !!

Lets say you had 11 children, I'll describe them and you name them (first and middle).
1) A boy, "emo", black hair, blue eyes, sweet -
2) A girl, "goth", pyromaniac(likes fire) -
3) A girl, funny, bubbly, sweet -
4) A girl, very religious, a bit stuck up -
5 & 6) Twins, a boy and a girl, mischievous and troublesome, both have blonde hair and green eyes -
7) A boy, sporty, tanned, "prep" -
8) A boy, ladies man, brown hair and brown eyes -
9) A girl, loves vintage, "indie", wavy light brown hair, green eyes, opinionated -
10) A boy, very smart, loves computer games, caring, romantic, black hair -
11) A girl, she 'gets around', bisexual, drinks, parties but still maintains good grades -

LMAO - NOW - I BET YOU PICKED COMMON NAMES FOR SOME AND OLDER TYPE - GRANDPARENT NAMES FOR OTHERS OF THESE INDIVIDUALS !!!! So interesting !!

The best answer :

1) Ryan Alexander

2) Ruby Renee

3) Emily Grace

4) Victoria May

5 & 6) Kai Jacob and Leah Mackenzie

7) Thomas Alfie

 8) Steve Nicholas

9) Indigo Faith

10) Ethan Samuel

11) Tracie Scarlett

see what I mean - its disgraceful !!!! And starts sooo young !!! =

There are so many different Stereotypes - and all because whenever we don't have a good understanding of a subject, say, of people or countries, then we tend to make assumptions about them some are good and some bad - as with all things - but for example :

Negative Stereotypes

Obviously the first one - All fat people overeat or don't excersise

Talking with an accent makes you Common or thick

Tattoos are for Sailors, Criminals and Sluts

All Gingers are lesser people

All blond women are dumb.

All red heads are sluts.

Christians are homophobic. They are blinded by God and will recruit you if you go near them. All politicians are philanders and think only of personal gain and benefit.

If I wear Goth clothing I'm a part of a rock band, depressed, or do drugs.

Girls are only concerned about physical appearance.

Guys are messy and unclean.

Men who spend too much time on the computer or read are geeks.

Men who are not into sports are termed as gay.

All librarians are women who are old, wear glasses, tie a high bun, and have a perpetual frown on their face.

Girls are not good at sports.

All teenagers are rebels.

All children don't enjoy healthy food.

Only anorexic women can become models.

Women who smoke and drink do not have morals.

Men who like pink are effeminate.

 

 

 

Positive Stereotypes

All Blacks are great basketball players.

All Asians are geniuses.

All Indians are deeply spiritual.

All Latinos dance well.

All Whites are successful.

Asians have high IQs. They are smarter than most in Math and Science. These people are more likely to succeed in school.

African Americans can dance.

All Canadians are exceptionally polite.

French are romantic.

All Asians know kung fu.

All African American men are well endowed.

Italians are good lovers. -

 

SEE - ITS SOOO TRUE - YOU READ THOSE EXAMPLES AND THOUGHT - YUP - !!

 

 

 

 

There are other types of Stereotype from Gender to Race - and every country has their own idea of stereotypical ideals = Its accepted that is is a way of over simplifying groups of people

 

 

BASICALLY - ( Otherwise this could go on and on ) There are other reasons why people look and sound and behave, dress differently !! - People should start to look outside the box - and ask themselves questions before judging .... and - if thinking - IS IT ANY OF OUR BUSINESS !!! ;) !! WOW - I FEEL LIKE I WENT BACK TO SCHOOL THEN FOR A MINUTE - NOT MY USUAL TYPE OF BLOG - AT ALL - AND SORRY FOR THE RANT - BUT - WELL - I NEEDED TO GET THAT OUT !!

ONLY PASS JUDGEMENT WHEN YOU ARE AWARE OF THE CIRCUMSTANCES !!!!!